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Patient Resources/ Helpful Links

This is a collection of links to organizations, educational resources and reference services that some patients have found to be useful. This list is by no means inclusive and is only provided as some potential informational resources.

Topic Contact Information
General Medical Information
  Medline
http://www.ncbi.nlm.nih.gov/PubMed/
  Medscape
http://intapp.medscape.com/px/medlineapp/medline?cid=med
  U.S. National Library of Medicine
http://www.nlm.nih.gov/
  National Health Information Center
http://www.health.gov/nhic/
  Healthfinder
http://www.healthfinder.gov/
  Agency for Healthcare Research Quality
http://www.ahrq.gov/
  National Guidelines Clearinghouse
http://www.guideline.gov/
General Neuro-Related Information
Neuro:// On-Call (American Association of Neurological Surgeons)
http://www.neurosurgery.org/
  American Academy of Neurologists
http://www.aan.com/public/index.cfm
  National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/
  Society for Neurosciences
http://web.sfn.org/
  American Academy of Neurological and Orthopedic Surgeons
http://www.aanos.org/
Alzheimer’sDisease
  Alzheimer’s Association
http://www.alz.org/
 Telephone: 1-800-272-3900
Aneurysms and AVMs
  Aneurysm and AVM Support Group
http://www.westga.edu/~wmaples/aneurysm.html
Aphasia
  Academy of Aphasia
http://www.academyofaphasia.org/
Telephone: 1-925-372-2670
  National Aphasia Association
http://www.aphasia.org/
Telephone: 1-800-922-4622
Back Care
  American Academy of Orthopedic Surgeons
http://www.aaos.org/wordhtml/home2.htm
Telephone: 1-800-346-AAOS
  American Academy of Physical Medicine and Rehabilitation Physicians
http://www.aapmr.org/
  American Chiropractic Association
http://www.amerchiro.org/
Telephone: 1-800-986-4636
  National Institute of Arthritis and Musculoskeletal and Skin Disease
http://www.niams.nih.gov/
Telephone: 1-877-22-NIAMS
Brain Tumor Resources
  National Brain Tumor Foundation
http://www.braintumor.org/
Telephone: 1-800-934-CURE
  The Brain Tumor Society
http://www.tbts.org/
Telephone: 1-800-770-8287
  American Brain Tumor Association
http://www.abta.org/
Telephone: 1-800-886-2282
  The Children’s Brain Tumor Foundation
http://www.childhoodbraintumor.org/
Telephone: 1-977-217-4166
  Acoustic Neuroma Association
http://anausa.org/
 Telephone: 1-770-205-8211
Cancer
  American Cancer Society
http://www.cancer.org/docroot/home/index.asp
Telephone: 1-800-ACS-2345
  Cancer Information Service
http://cis.nci.nih.gov/
Telephone: 1-800-4-cancer
Caregiver Support
  Well Spouse Foundation
http://www.wellspouse.org/
Telephone: 1-800-838-0879
Clinical Trials
  National Institute of Health
http://www.cc.nih.gov/
  National Institute of Health Information Center: Patient Recruitment and Public Liaison Office
http://www.cc.nih.gov/ccc/prpl/
 Telephone: 1-800-411-1222
  National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/
  Brain Tumor Trials
http://www.virtualtrials.com/
  Society for Women’s Health Research
http://www.womens-health.org/
Telephone: 1-202-223-8224
  National Organization of Rare Disorders
http://www.rarediseases.org/
Epilepsy Information
  The Epilepsy Foundation
http://www.epilepsyfoundation.org/
Telephone: 1-800-332-1000
Grief
  Compassionate Friends (Grief Support after loss of child)
http://www.compassionatefriends.org/
Telephone: 1-800-969-0010
Head Injury Resources
  Brain Injury Association of America
http://www.biausa.org/Pages/splash.html
Telephone: 1-703-761-0750
  ThinkFirst
http://www.thinkfirst.org/
  The International Brain Injury Association
http://www.internationalbrain.org/
Headache
  American Council for Headache Education
http://www.achenet.org/
  National Headache Foundation
http://www.headaches.org/
  M.A.G.N.U.M (Migraines)
http://www.migraines.org/
Pain Resources
  The American Pain Foundation
http://www.painfoundation.org/
  The American Chronic Pain Foundation
http://www.theacpa.org/
  The American Academy of Pain Management
http://www.aapainmanage.org/
Parkinson’s Disease/Tremors
  National Parkinson Foundation
http://www.parkinson.org/
Telephone: 1-800-327-4545
  American Parkinson’s Disease Association
http://www.apdaparkinson.org/user/index.asp
Telephone: 1-888-400-2732
  Coping with Essential Tremor
http://www.essentialtremor.org/
Practitioner Databanks
  National Practitioner Databank
http://www.npdb-hipdb.com/
  American Medical Association Physician Select
http://www.ama-assn.org/aps/amahg.htm
Spinal Cord Injury
  American Spinal Cord Injury Association
http://www.asia-spinalinjury.org/home/index.html
Telephone: 1-404-355-9772
  National Rehabilitation Information Center for Independence
http://www.naric.com/
  American Paraplegia Society
http://www.apssci.org/
Stroke
  The Brain Matters
http://www.thebrainmatters.org/stroke.htm
  National Stroke Association
http://209.107.44.93/NationalStroke/Default.htm
  American Stroke Association
http://www.strokeassociation.org
  American Heart Association
http://www.americanheart.org/presenter.jhtml?identifier=1200000
Trigeminal Neuralgia
  The Trigeminal Neuralgia Association
http://www.tna-support.org/welcome.html
  Wellness National Wellness Institute
http://www.nationalwellness.org/nwi_Home/nwi.asp